I stepped from Plank to Plank
A slow and cautious way
The Stars about my Head I felt
About my feet the Sea.

I knew not but the next
Would be my final inch -
This gave me that precarious Gait
Some call Experience.

Emily Dickinson, c. 1864

Sunday, October 29, 2017

Looking for silver linings

Big old golden tree
Those of you who read my other blog might have read the post I wrote this past Friday, about the discovery I made when I went to see the retina specialist. I was afraid that I wouldn't be able to get the cataract surgery I've been both looking forward to and dreading, scheduled for the end of November. I've been having quite a bit of visual disturbance, flashing lights and blurred vision, especially in my left eye. When I had my eyes checked recently, hoping for a correction to my lenses, I found that cataract surgery would be necessary to improve my vision. But it's not so simple: yes, I can have the cataract surgery, but it's not going to make my vision perfect, by any means.

I learned on Friday that my AMD (age-related macular degeneration) took a pretty dramatic downturn during the past year. The small hole I had in the left macula is now three times as big as it was last year, and cataract removal isn't going to fix it. The doctors don't know why it began to get worse so quickly, because I have the "dry" form, which usually progresses slowly. There's no cure for it. If I had the "wet" form, which means blood vessels are forming in the back of the eye, they could at least treat it. But so far, the vision loss I have is not right in the center of my vision, but a little off to the side and down. That will progress eventually, but for now, I've got 20/30 vision in both eyes.

For those of you who know little about AMD, here's a link to learn more. If you read about it, the series of three pictures of what AMD looks like will give you an idea of what I'm seeing right now. my vision is similar to the middle picture, but the blurred area is to the left of center. My hope is that the cataract surgery will brighten things up a bit, at least. I'm actually growing more comfortable with the fact that my life is not over even if it progresses to the extent in the third picture. One is considered legally blind if your eyesight reaches 20/200. I've got a ways to go.

Okay, now that I've got all that background information out of the way, I'm busy looking for the silver lining in all this. In just a couple of days, I've managed to pass through the first stages of grief and sadness. Of course, I already knew I had AMD, but I didn't have any obvious symptoms and knew I was under the care of some good doctors. There are advances being made with stem cell research, and clinical trials are under way. Who knows what might be discovered in the next few years? I will be watching and reading with interest.

In the meantime, I'll avail myself of low vision aids when necessary, mostly magnifying text so that one can read using peripheral vision. Since right now my central vision is mostly okay, I won't need to do that, just enlarge the text on my devices if necessary to read comfortably. You know, we all lose acuity in many areas (such as vision and thought) as we age, and this is not something as bad as a cancer diagnosis. By the way, my friend Ronni is coping quite well with her pancreatic cancer diagnosis and surgery over the last few months and is now dealing with chemo in a very positive way. You can read about her struggle to regain normal life on her blog here. So if I look at my own predicament through her eyes, I feel very fortunate indeed.
Look at the sparrows; they do not know what they will do in the next moment. Let us literally live from moment to moment. (Mahatma Gandhi)
Yes, it's my ability to think ahead to a dark future that is what bothers me this morning. Right now, this very moment, is pretty darn good. And yesterday, 26 of us ladies gathered to walk in the gorgeous sunlight together, in the crisp cool air of autumn. My knees are in the best shape I remember for many years, and I could walk briskly, if not in the front with the fastest walkers, at least I was in the middle of the pack, feeling the blood pump through my veins as I huffed and puffed with my dear friend Lily by my side. I have already had more love and good fortune in my life than most, so why should I feel depressed?

The only thing the doctor suggested I change in my everyday life right now is to get those over-the-glasses dark wraparound eye coverings so that the amount of sunlight that reaches my eyes is limited. I'm already taking all the supplements and doing everything else that might help, such as eating right and taking fish oil and whatnot. I had a pair of those from long ago, so I dug them out and wore them yesterday in the bright sunlight. Although I have transition lenses and have used them for a long time, they don't work in the car or through other glass, and light leaks around the sides of my glasses as well. It's not known for sure whether or not bright sunlight exacerbates AMD, but it doesn't hurt to try to slow down the progression.

As I grow older, I realize that contentment comes from within and is not predicated on one's situation. In researching all my options about AMD, I learned that Judi Dench suffers from it and is seven years older than me. She still makes movies and copes with her loss of vision with grace. I saw her in her latest movie last week, Victoria and Abdul, and she is delightful in it. The movie could have been better, but she was magnificent as Queen Victoria. As she has said in many interviews, AMD is something you get accustomed to, just like anything else. Everyone approaches adversity in different ways, and I am determined to make the most of every single day I am here on this wonderful planet.

So now you know what's been on my mind this past week, and where I am at this very moment, sitting in the dark with my sleeping partner next to me. There are very few people who are more blessed than I am, with friends and family near and far. The silver lining I see (and will always see) in the loss of my central vision, is that I will always be able to enjoy the feel of the wind in my hair, a walk in the rain, birdsong and love.
“Love looks not with the eyes, but with the mind,
And therefore is winged Cupid painted blind.” 

― William Shakespeare, A Midsummer Night's Dream
And so, dear friends, I will leave you with that quote from Shakespeare as I begin my brand-new day with joy and happiness. Please remember to be grateful for all that you have, whether it's exactly what you thought you wanted or not. I will spend this next week doing just that. Be well until we meet again next week.

15 comments:

Marie Smith said...

It hasn't taken you long to process the information from the doctor, Jan. My MIL uses the same sunglasses you describe as well. You are doing everything you can and adapting as you go. I admire your attitude and see you as a role model in this senior adventure we are on. Take care.

Rian said...

DJan, So sorry to hear about your AMD advancement. However, who's to say that it WON'T continue to advance (as you mentioned, the doctors really don't know all the whys and whens). Let's hope and pray for this. I had to go back and read your last post as I haven't been keeping up with blogs this week due to a stomach bug I picked up from my precious grand daughter. But she and I are both on the mends. As for the wrap around dark glasses, I also use these. Glare has always bothered me... and can cause a migraine. But these glasses are a big help.
I agree that it's important to be grateful for what we do have... and that we've gotten to the age we are as well as we have. We shouldn't fear the future and what it might hold, but simply live and enjoy each day as best we can (easy to say, harder to do - but doable with effort).

Linda Reeder said...

Looks like we are socked in with fog here this morning. It's pretty, but I'm missing the bright blue of the past few mornings.
Color is so important to me, that the thought of not seeing it saddens me. I fear the possible onset of macular degeneration. And yet, if it happens, one must deal with it as best one can, like you already are. You are a life model for many of us. You hope for the best, but take action against the worst.

Gigi said...

What terribly disappointing news! Maybe the progression will be slow and with all the advances in technology, it's entirely possible that a new procedure will come along to stop it or cure it. You are always in my prayers, but I will add this to the list.

Tabor said...

I needed this post today. I am in a dark place and trying to accept what I cannot change. Your post is inspirational and give me strength.

Arkansas Patti said...

You have done a great job of coming to grips with a possibility and are doing everything in your power to help yourself. I was wondering if you use amber computer glasses when you are on the computer? I do and I find my eyes are much more relaxed after a couple of hours on the computer. Kale also is a great weapon against MD as it is full of Luten. I eat it almost every day in the form of chips. They are addictive.
Keeping you in my thoughts and prayers.

Elephant's Child said...

Your silver lining is diamond studded platinum. At least.
I am so glad to read your positive take on this latest step. Hugs.

The Furry Gnome said...

You have better vision than I do, with my glasses. More major surgery coming up for me. I may know more after Tuesday. Take care, as I know you will.

Far Side of Fifty said...

Keep on thinking positive! Make the best of each day cause we never know how many we will have! :)

Red said...

The first stark diagnosis is hard to take. You are doing as much as you can and I hope that progression is slow. I'll bet you've found many people with AMD.

Sally Wessely said...

I always love and admire your approach to every obstacle or kink in the road that you encounter. You will adapt and thrive. I know that. Thank you for your informative post on AMD. I have struggled with my eyes for two years, but thankfully, I do not have AMD. As Furry Gnome said, you have better vision than I do with glasses. That being said, I don’t have a progressive disease and I don’t see dark holes, so I am very grateful. Take care. XO

Rita said...

Sometimes all we can do in the end is look for the silver lining. ;) Since it is normally slow progressing lets hope that the faster was a fluke. I do think you're fortunate that yours isn't right in the center, either. I would think that makes it easier to see without tilting your head all over the place. I love Judi Dench!! Now I have even more to admire about you both. ;)

Trish and Rob MacGregor said...

Please write a book.

troutbirder said...

I needed your viewpoint today and thank you for that DJan. Mrs. T. and I saw her neurologist at Mayo yesterday and the short term memory continues as expected downhill but new meds have helped big time with the agitation, anger etc. I always tried to keep positive even after the loss of our oldest son to bi polar. Still today the daily caretaking takes extra effort. I hope to keep up...:)

John's Island said...

Hi DJan, I just had to sit here for a while and reflect on your post after reading it. You continue to be a teacher for me with your ability to see the positive side of things and explain it so elegantly. Love this post. Thanks, as always, for sharing with us!