I stepped from Plank to Plank
A slow and cautious way
The Stars about my Head I felt
About my feet the Sea.

I knew not but the next
Would be my final inch -
This gave me that precarious Gait
Some call Experience.

Emily Dickinson, c. 1864

Sunday, August 3, 2025

Waiting for the referral

Me and Lily, taken by Steve

Yesterday, Lily joined Steve and me at the coffee shop. She was wanting to do some grocery shopping at the Farmers' Market and had some time before, which she spent with the two of us. She had her usual latte, while I enjoyed my double Americano, and Steve filled his own coffee cup holder with his usual straight coffee. Then we set out for a walk. It was shortened by Lily's visit, but it was worth it to have her tell some stories about her recent visit with her son, who came up from Guatemala to help celebrate her new status as an American citizen.

I have been more than a little rattled by last week's discovery that the thing on my neck is cancerous and needs to be removed as soon as possible. Then I found out when I tried to see if the referral had been accomplished, that no, it hasn't happened yet because my primary dermatologist was on vacation, had just returned and didn't get around to it yet. I do know that the referral should happen early next week, but I just don't understand why it is taking so long, I found that indeed I will probably see a young female doctor by the name of Joy Makdisi for the procedure. I think it's auspicious that someone named "Joy" will remove the growth. But shouldn't I be first in line?

The pathology report didn't inspire any confidence, either. This is what the report said:
FINAL DIAGNOSIS
SKIN, LEFT NECK, SHAVE:
Squamous cell carcinoma in situ, involving the deep and peripheral tissue edges.
Yikes! I don't like the sound of that. What does it mean that it's in the "deep and peripheral tissue edges"? How deep is deep? and if it's in the peripheral edges, does that mean there is more and that it might be hard to remove it all? I am sending myself into a tizzy, just considering what it all means. And of course, until the Mohs surgery is accomplished, nobody really knows the answers to these questions. I will be so happy to have a date to look forward to, hopefully sometime very soon. But I also realize this is not an optimal time for getting such surgeries scheduled, with so many people on vacation during the summer months. At least I will eventually have the surgery and my insurance should cover most of the costs. Even if I had to pay up front, it would be worth it just to get this taken care of.

In the meantime, I am not going to worry about the Canadian MacuMira eye treatment until this is cleared up. Both are going to be expensive, and I am willing to take care of it all myself, if necessary. I don't trust the insurance companies to be there when I need them. These days everything is complicated.

I guess this is what it means to be an elderly person in her (almost) mid-eighties. Her health not likely to become miraculously better in the future, as our bodies do wear down and out as we use them. I notice in the obituaries there are many people who die of "normal" causes and they are my age or even younger. As for my parents, neither of them lived as long as I already have, and genetics plays a role in our ability to live long and healthy lives. I wonder how long they might have lived if statins and better treatment for high blood pressure had been available to them when they were my age. Oh wait, they never made it into their eighties, or even their seventies! Daddy was 62, and Mama was 69 when they died, fourteen years apart.

Mama had a sibling, my Uncle Joe, who developed melanoma and died from it. He was a veteran and lived with my grandmother until he passed away. I remember that he had a mole on his earlobe; he didn't realize it was cancer, and it spread to his brain. He went into a coma for several weeks, but he did eventually come out of it. Interestingly, after he recovered, he then spoke with a thick German accent, and nobody even knew whether he had ever learned the language! He wasn't very old when he died, and he never married. I remember him still, and I even spent several months staying with Grandma and sleeping in his bed, long after he was gone. I remember Mama telling me he was exceptionally bright and accomplished many things during his life, but all of that is gone now. Nobody alive remembers. These days, I feel a kinship with him, as I try not to succumb to this skin cancer. My thoughts gravitate often to that spot on my neck and each time, I pray for guidance.
 No actual events in most people's lives that will be remembered for long after we die. There are a few in history, such as the ancient Greek philosophers, whose works are still read and revered, and other notable people who still give today's world much to think about. I still read and cherish the poetry of Emily Dickinson, who was in her fifties when she died, but she had written some of the most incredible poems by that time.
To make a prairie it takes a clover and one bee, One clover, and a bee, And reverie. The reverie alone will do, If bees are few.
So much of the feeling of her her poems lingers long after I have forgotten the words. Years ago I went on a five-day solo backpacking trip, and I spent many hours committing several of her poems to memory. They are still there to be accessed when I need them. I am so glad that I can still read well enough, using my low vision setting on my Kindle, to read and appreciate other great poets today.

Longevity of one's life is not a given, or even something to be desired. There are many who have managed to fulfill their mission here on Earth in a short time, and lay down with a sense of accomplishment, ready to move on to the next adventure. I hope to be one of them, but I won't know if I made it until I, too, am at the end of my life and look back on everything I went through. I also believe that this life is not the end of my consciousness, but it is only a belief. I do believe that love is timeless, and that as I surround myself in love and charity, I will end up having been glad to have been here.

My post is pretty much finished, and yes, John will be here before I know it, ready to whisk me off to breakfast. My dear virtual family are often in my thoughts these days, and you know that means you, too. I am incredibly grateful for you, and for your own long (or short) life. Be well until we meet again, dear friends.


13 comments:

John's Island said...

Your strength shines bright, though shadows fall,
And "Joy" may guide through this, after all.
In reverie and love you stand—
Still writing grace with steady hand.

ApacheDug said...

DJan, that's a lovely photo of you and your friend Lily. I can certainly understand your anxious feelings about the cancer, it's so frustrating when people don't seem to consider it as seriously as you do. I'm just glad you were able to catch it in time, compared to your poor Uncle Joe. What a fascinating character he was, and it is a shame how these individuals are just lost to time. I hope your week ahead is filled with promise, and I wish I could speak so eloquent as John above! Take care.

Far Side of Fifty said...

Patience when dealing with Doctors and appointments is necessary. I know it is not easy. Mohs surgery is the best they will only take what is cancer and not a big bunch of healthy tissue. I do hope you get a surgery date soon. Try to stay calm!!

Linda Reeder said...

I hope you can get your appointment quickly. I have to wait two months for the second treatment of my painful hip flexor, but at least it's only pain.
Reverie - a state of being pleasantly lost in one's thoughts. That sounds nice. I need to be better at daydreaming.

Rita said...

I hope you can get the cancer taken care of quickly. I had to wait for about five months and get a visiting Mohs surgeon from California because my dermatologist was booked up for a year. Sounds like you will be taken care of soon.
Always good to see Lily! She's beautiful inside and out. :)

Anonymous said...

"In Situ" generally means it hasn't spread. Squamous cell is also very treatable. Still, the waiting! Ooof.
Jackie M

Red said...

Sorry to hear about the skin issue. When we have something that is serious we would like it to be done yesterday. I have a carotid artery that is 85% blocked. I've been waiting for over a month and surgery will not be scheduled soon. The issue is that our life and quality of life could be improved with treatment. You will get treatment and much can be done with skin cancer. I will still be following your blog.

Marie Smith said...

It is nice to see Lily again. She is a great friend and now citizen.

Our friend is waiting for radiation treatment. Like with you, it isn’t happening quickly enough. I remember waiting for biopsy results with the same anticipation. It never happens soon enough. Hang in there, Jan. Soon…

gigi-hawaii said...

Good luck with the cancer surgery. My sister has skin cancer, too. With all my moles on my body, I probably have it, too, but am unwilling to be examined for various reasons.

Anvilcloud said...

It is Monday morning, and a new week has begun. If all goes well, you will find some answers soon and get your procedure done. Fingers crossed.

Anonymous said...

DJan, I’m a long time reader of your blog via apachedug & your inner strength is an inspiration. I hope to one day come up northwest and take one of those great hikes with u , take care

Rian said...

Hi DJan! My Mohr's surgery is coming up in 2 weeks... not looking forward to it, nor the reconstruction and recovery. But we do what we have to do, right? Like you, I'm stressed... but trying my best not to think about it (doesn't help - I tell myself "just do it!" ) And glad you and Lily had some time together.

janinsanfran said...

At 78, I share your sense that people I know and even love keep dying and turning out to be younger than I am. How odd. Wishing you all the best with Mohs ...